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Medical Care - Medical Pre-Surgery Testimonials

Sue and Joe New - PWP Challenges Both Mom and Son:

 

For Sue New, PWP was the difference in helping her deal with a potentially life threatening issue for her son, Joseph.

“I walked into his room one morning and found that he wasn’t breathing,” Sue said. “We later had a sleep study and it showed that that he definitely had sleep apnea.” Sleep apnea is a sleep disorder that causes a person to stop breathing repeatedly during sleep. Left untreated, it can have serious and life-shortening consequences.

Sue’s son, Joe is 17 and a music lover. He also is a person who has Down syndrome, cerebral palsy and mild seizure disorder. While he had been diagnosed with sleep apnea, he could not tolerate wearing the CPAP/BiPAP mask and headgear. This posed a challenge for Sue. How would she get the mask on Joe so that he could sleep?

“I had known about Practice Without Pressure from the Red Clay Resource Fair and the Meadowood School where Joe goes. It was always in the back of my mind,” continued Sue. “Still, I resented having to deal with the mask and I was scared that I would do the wrong thing. It took me several months to finally make the call to get some help.”

At PWP, the practice specialist’s focus is usually on the individual with disabilities, helping them learn to participate in procedures. The parents and support people are involved but the focus is the individual. Sue and Joe’s situation called for a different approach.

After meeting with Joe and Sue, Deb Jastrebski, PWP’s CEO and Founder and Master Practice Specialist, quickly realized that Sue was the person who needed the training more so than Joe.

“I also use a CPAP/BiPAP mask and it took me awhile to get used to it, ” Deb said. “Sue was afraid of hurting her son. I knew that if Sue could work through her issues, then the whole process would be easier for Joe.”

Over several weeks, Deb helped Sue become comfortable with the mask and then suggested ways to approach Joe.

“First, I wanted to help her with her fears,” Deb said. “Sue needed to understand how the mask worked, so we experimented with it. We took it apart and put it back together several times. She wore the mask to see how it felt. After this, the mask was more familiar and not as scary.”

Throughout the process, Sue’s attitude changed from resentment to acceptance. “Deb gave me pep talks and encouraged me to see this as a puzzle. I began to challenge myself and say ‘I betcha’ I can do this.’” After working with Deb, Sue practiced putting the mask on Joe. She learned to move quickly without any interruption and to put the mask on Joe when he was already asleep.

Sue and Joe continue to come to PWP to improve how they work together. “This is a long process and it is good to know that there is someone there to watch me, to hold me accountable,” Sue said.

 

 

Practice Without Pressure Corporate
P.O. Box 829
Bear, DE 19701

(302) 419-8131